Homecare for Mesothelioma Patients

Homecare for mesothelioma patients may become needed, especially for patients undergoing treatment. Mesothelioma homecare providers range in skill level and duties they perform. Depending on the service, mesothelioma homecare may not be covered by insurance. This can be a huge financial burden, but there may be assistance available.

Get a Free Mesothelioma Guide

What Is Homecare for Mesothelioma Patients?

Mesothelioma homecare makes the transition from hospital to home much easier. With homecare for mesothelioma patients, a caregiver works in the patient’s home to provide services comparable to what patients receive in the hospital.

Mesothelioma is an aggressive form of cancer — and as it progresses, it can be debilitating. The cancer typically has four stages, each of which may require different levels of assistance.

Patients who are undergoing mesothelioma treatment at a cancer center are faced with having to transition back into the home when they are discharged. These patients can be left very weak and too tired to return to normal life. In these cases, homecare for mesothelioma patients often becomes necessary.

Mesothelioma home caregivers help with daily tasks. They also tend to become companions for the mesothelioma patient.

There are many providers that offer mesothelioma homecare, including:

  • Home health agencies
  • Hospice organizations
  • Home care aid agencies
  • Staffing agencies
  • Medical equipment and supply companies
  • Home infusion companies
  • Pharmaceutical companies

Oftentimes, several types of home care providers work together so they can offer a wider range of services. In addition, some mesothelioma homecare providers are professionals who do not work for companies.

Benefits of Homecare for Mesothelioma Patients

Homecare for mesothelioma patients is ideal for those who are undergoing treatment, and the benefits of homecare are enormous.

The National Institutes of Health (NIH) reports that these benefits include:

  • Better medication management
  • Improved management of symptoms
  • Better health outcomes due to fewer delays in treatment
  • Enhanced quality of life, both physically and emotionally
  • Reduction in unnecessary emergency room or hospital visits
  • Shorter hospital stays
  • Reduced waiting time for care

Many patients and their loved ones are not aware of what homecare for mesothelioma patients is, what it entails, and how important the benefits are. They may also be unaware of the types of mesothelioma homecare that are available and what each type does.

Types of homecare for mesothelioma patients include:

  • Home health agencies: These services typically involve skilled care provided by nurses, therapists, social workers, homemakers, medical equipment suppliers, and volunteers. The services are usually available 24/7.
  • Hospice care: This involves a skilled team of experts and volunteers who provide medical, psychological, and spiritual care when there no possibility for a cure. They help the family care for the patient and make sure the patient’s wishes are honored. They also do everything possible to keep the mesothelioma patient free of pain.
  • Homemaker and home care aid agencies: These agencies help with day-to-day tasks such as making meals, assisting with bathing and dressing, and housekeeping.
  • Pharmaceutical and infusion therapy companies: These companies deliver medications, equipment, and nursing services to patients who need intravenous (IV) treatments at home. They also teach patients and loved ones how to give the treatments themselves.
  • Medical equipment and supply dealers: These companies provide equipment such as respirators, oxygen tanks, wheelchairs, and walkers. They deliver the equipment, set it up, and teach mesothelioma patients and their caregivers how to use them.
  • Private duty agencies: These agencies also help with day-to-day tasks like cooking, cleaning, and helping patients with bathing and getting dressed.
  • Independent providers: These are nurses, therapists, aides, and companions who work independently and are hired directly by the mesothelioma patient. The patient or family members must find, hire, and supervise this type of provider. They also pay them directly and, therefore, may be responsible for taxes, insurance, and other expenses.

Finding a Good Home Caregiver

High-quality homecare for mesothelioma patients is critically important.

Patients are often too weak to look after themselves, meaning mesothelioma home caregivers must be able to be counted on to act in the patient’s best interest.

Some questions to ask when hiring homecare for mesothelioma patients are:

  • Are they accredited by a nationally recognized organization?
  • Are they Medicare-certified?
  • Do they have written statements that list their services?
  • How many years have they been in service?
  • Do they create a tailored care plan for each patient based on specific needs?
  • Will a nurse or social worker do a preliminary evaluation?
  • Are references available?
  • Do they require a family caregiver or other primary caregiver in the home at all times?
  • How do they handle payment and billing?
  • If a respirator or oxygen machine is provided, who is available if any equipment problems occur?
  • Do they have a 24-hour phone number for any questions, problems, or complaints?
  • Is there an emergency plan in case of a power failure?
  • How quickly can they start?
  • What are their policies on inpatient care if it becomes needed
  • If needed, where is the inpatient care provided?

Mesothelioma Home Caregiver Duties

Depending on the patient’s needs, mesothelioma homecare duties may include:

  • Managing medications
  • Offering companionship and emotional support
  • Cleaning and home maintenance
  • Driving to appointments
  • Scheduling appointments
  • Helping with finances
  • Planning meals and feeding
  • Bathing
  • Dressing

Cost of Mesothelioma Homecare

The cost of treatment for mesothelioma patients can exceed a shocking $400,000. On top of that, having to hire a homecare professional for mesothelioma patients can seem financially impossible.

Many insurance plans will cover mesothelioma homecare, but most do not cover 24/7 services, which many patients may eventually need. Additionally, some plans cover only skilled care but do not cover personal care.

Patients and their families must usually pay for a significant portion of mesothelioma homecare, which can be financially devastating.

Financial Help for Mesothelioma Homecare

Homecare for mesothelioma patients must be considered medically necessary to be covered by most health insurance plans. Different plans have different policies, and Medicaid coverage varies based on the state a patient lives in.

Some mesothelioma homecare agencies get money from state or local government and community groups. Others receive donations from charity groups or individual donors.

Additionally, the Department of Veterans Affairs (VA) may provide assistance to mesothelioma patients who have served in the military.

For services that are not covered, mesothelioma patients must pay out of their own pockets if they can afford it. However, since mesothelioma is almost always caused by exposure to asbestos, patients and their loved ones may be legally entitled to money to help pay for care.

To find out if you or a loved one is entitled to financial compensation to pay for mesothelioma homecare contact us now. Our team of Case Managers is available 24/7 to answer your questions and help you get the assistance you deserve.

Mesothelioma Support Team
Stephanie KiddWritten by:


Stephanie Kidd grew up in a family of civil servants, blue-collar workers, and medical caregivers. Upon graduating Summa Cum Laude from Stetson University, she began her career specializing in worker safety regulations and communications. Now, a proud member of the American Medical Writers Association (AMWA) and Editor-in-Chief of the Mesothelioma Justice Network, Stephanie serves as a voice for mesothelioma victims and their families.

View 4 Sources
  1. American Cancer Society. “Programs and resources to help with cancer related expenses.” Retrieved from https://www.cancer.org/treatment/finding-and-paying-for-treatment/understanding-financial-and-legal-matters/managing-costs/programs-and-resources-to-help-with-cancer-related-expenses.html. Accessed on January 27, 2020.
  2. American Cancer Society. “What home care services are available for cancer patients.” Retrieved from https://www.cancer.org/treatment/finding-and-paying-for-treatment/choosing-your-treatment-team/home-care-agencies/types-of-services-available.html. Accessed on January 27, 2020.
  3. American Cancer Society. “Who pays for home care for cancer patients?” Retrieved from https://www.cancer.org/treatment/finding-and-paying-for-treatment/choosing-your-treatment-team/home-care-agencies/who-pays.html. Accessed on January 27, 2020.
  4. National Center for Biotechnology Information. “Cancer patient-centered home care: a new model for health care in oncology.”Retrieved from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3176172/. Accessed on January 27, 2020.
Back to Top