Top 4 Mesothelioma Organizations

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Mesothelioma organizations help research new treatments for the disease and spread awareness about the dangers of asbestos exposure. Top mesothelioma organizations include the Meso Foundation, the Asbestos Disease Awareness Organization, the Pacific Mesothelioma Center, and the LUNGevity Foundation. Donating to these organizations can help them to promote their missions.

What Are Mesothelioma Organizations?

Mesothelioma organizations are nonprofit groups that provide a variety of services to help in the fight against this cancer.

These groups:

  • Raise awareness about mesothelioma and asbestos: Mesothelioma is only caused by asbestos exposure, but this mineral is still not banned in the United States. It is often found in buildings made between the 1930s and 1980s when asbestos was thought to be safe.
  • Offer aid to patients and families: Advocates at these groups truly understand what it’s like to face this rare cancer, and may be able to help patients navigate life after a diagnosis. Some also offer resources (like cancer travel grants) not easily available elsewhere.
  • Sponsor new cancer treatments and research: Mesothelioma organizations will do everything they can to find a cure. This includes funding research into new treatment options.
  • Lobby politicians: With the help of politicians, bills to ban asbestos and support mesothelioma victims can become law.

Mesothelioma organizations don’t have unlimited budgets. They need help from everyday people to operate. Donating to these organizations can help support cancer patients, ban asbestos, and find a cure. Learn about some of the top mesothelioma organizations below.

The Meso Foundation

The Meso Foundation (full name the Mesothelioma Applied Research Foundation) was founded in 1999. It was established to help promote research of new treatments for mesothelioma.

Here are a few services offered by the organization:

  • Treatment Information: On the Meso Foundation’s website, patients can find basic information about mesothelioma treatments. They also have resources for caregivers, nutrition suggestions, and advice on cancer care during the COVID-19 pandemic.
  • Fundraising: This organization has raised over $10 million for mesothelioma clinical research.
  • Patient Aid: The Meso Foundation has a helpline where patients can find cancer specialists, financial assistance, and clinical trials.
  • Support Groups: The organization runs several online and over-the-phone support groups for those facing mesothelioma as well as their family members.

You can learn more and make a donation through the Meso Foundation website.

The Asbestos Disease Awareness Organization

The Asbestos Disease Awareness Organization (ADAO) was founded in 2004 in California by Doug Larkin and Linda Reinstein. It is currently the largest nonprofit in the U.S. focused on asbestos advocacy.

Here are the services offered by the ADAO:

  • Advocacy: The ADAO helps people take action against asbestos exposure by providing petitions to sign, advice on contacting Congress, and other efforts.
  • Education: The organization has an online resource library that helps people better understand the risks of asbestos exposure and how they can get treated for mesothelioma.
  • Community Initiatives: The ADAO runs several community initiatives to help people learn more about mesothelioma and asbestos. The most notable is its annual conference.

Find more information on the ADAO website.

The Pacific Mesothelioma Center

The Pacific Mesothelioma Center (PMC) is a division of the Pacific Heart, Lung, & Blood Institute. While the PMC is primarily a treatment-focused organization, also it does awareness and advocacy work.

Services offered by the PMC include:

  • Treatment: The PMC has an in-house lab that allows it to offer innovative treatments to patients. These treatment efforts are led by Dr. Robert Cameron, one of the world’s best mesothelioma doctors.
  • Advocacy: This group sponsors events like 5Ks, motorcycle rides, and conferences that raise funds for mesothelioma treatments.
  • Education: Like the Meso Foundation, the PMC provides basic information about how mesothelioma is diagnosed and treated.

You can donate to the PMC online through its website. Funds raised go to treating new patients.

Visit the UCLA Health website to learn more about Dr. Robert Cameron.

The Mesothelioma Cancer Network has no affiliation with and is not endorsed or sponsored by Dr. Robert B. Cameron. The contact information above is listed for informational purposes only. You have the right to contact Dr. Cameron directly.

The LUNGevity Foundation

The LUNGevity foundation was founded in 2001 in Chicago. The organization was founded by seven people who had been diagnosed with lung cancer and wanted to spread awareness and find a cure.

The LUNGevity Foundation:

  • Funds Research: The LUNGevity foundation primarily seeks funding to help with research into lung cancers and associated cancers such as mesothelioma.
  • Provides Community Support: The organization seeks to be a space where lung cancer patients can come to receive support and assistance.
  • Offers Educational Resources: The foundation also provides education for those who want to learn more about lung cancers and how they can be developed.

Learn more about this group and how to donate on the LUNGevity Foundation website.

Working With Mesothelioma Organizations

Each of these mesothelioma organizations does great work in helping spread awareness about the dangers of the disease. The professionals at these groups help communities and legislators to understand the scope of what they are facing.

Mesothelioma organizations also do a tremendous job of fundraising for medical researchers looking into new treatments for mesothelioma.

If you want to learn more about mesothelioma organizations, doctors, or other resources after a cancer diagnosis, contact us today. We can tell you more about your options and how to access them.

Mesothelioma Support Team
Stephanie KiddWritten by:

Editor-in-Chief

Stephanie Kidd grew up in a family of civil servants, blue-collar workers, and medical caregivers. Upon graduating Summa Cum Laude from Stetson University, she began her career specializing in worker safety regulations and communications. Now, a proud member of the American Medical Writers Association (AMWA) and Editor-in-Chief of the Mesothelioma Cancer Network, Stephanie serves as a voice for mesothelioma victims and their families.

View 4 Sources
  1. Pacific Heart, Lung, & Blood Institute (n.d.). Retrieved November 03, 2020, from https://www.phlbi.org/about-pacific-mesothelioma-center/
  2. Asbestos Disease Awareness Organization. (2019, August 04). Retrieved November 03, 2020, from https://www.asbestosdiseaseawareness.org/
  3. LUNGevity Foundation. (n.d.). Retrieved November 03, 2020, from https://lungevity.org/
  4. The Meso Foundation (n.d.) Retrieved November 03, 2020, from https://www.curemeso.org/